City of Philadelphia - File #: 110451

• File #: 110451
• Version: 0
• Type: Resolution
• Status: ADOPTED
• File created: 5/26/2011
• In control: CITY COUNCIL
• Final action: 6/2/2011
• Title: Declaring May, 2011 as Neuro-fibroma-tosis Awareness Month.
• Sponsors: Councilmember Tasco, Councilmember Green, Councilmember Greenlee, Councilmember Kenney, Councilmember Jones, Councilmember Goode, Councilmember O'Neill, Councilmember Rizzo, Council President Verna, Councilmember DiCicco, Councilmember Reynolds Brown, Councilmember Blackwell, Councilmember Clarke, Councilmember Krajewski

Date	Ver.	Action By	Action	Result	Tally
6/2/2011	0	CITY COUNCIL	ADOPTED
5/26/2011	0	CITY COUNCIL	Introduced and Ordered Placed On Next Week's Final Passage Calendar	Pass

Title
Declaring May, 2011 as Neuro-fibroma-tosis Awareness Month.
Body
WHEREAS, Neurofibromatosis ("NF") causes tumors to grow on nerves anywhere in the body, bone and skin tumors, bone deformities such as spinal scoliosis, leg bowing or twisting, café au lait spots on the skin, deafness, blindness, learning disabilities, debilitating pain, heart defects, and even death; and

WHEREAS, NF is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy, Tay Sachs, and Huntington's Disease combined; and

WHEREAS, NF can appear in any family and is worldwide in distribution, affects both sexes equally and has no particular racial or ethnic distribution, and 85% of cases are sporadic (i.e., no previous family history) and 15% are inherited; and

WHEREAS, While over 120,000 Americans have NF and one of every 3,000 newborns will develop the disorder, it still is relatively unknown to the public and much remains to be done to raise awareness of NF's devastating effects and the need for funding for research to prevent, treat, and cure NF; and

WHEREAS, The Children's Tumor Foundation (www.ctf.org) leads the efforts to fund critical research aimed at finding the causes of the disorder and developing treatments and a cure, and to provide support to people and families affected by NF; and

WHEREAS, NF research benefits an additional 100 million Americans (i.e., 65 million with cancer and 35 million with learning disabilities); and

WHEREAS, The Children's Tumor Foundation is observing May as National Neurofibromatosis ("NF") Awareness Month nationally to inform the public about this common genetic disorder; now, therefore, be it

RESOLVED, THAT THE COUNCIL OF THE CITY OF PHILADELPHIA, Declares and recognizes May as Neuro-fibroma-tosis Awareness Month in the City of Philadelphia.

FURTHER RESOLVED, That an Engrossed copy of this resolution be presented to Mayor William Br...