Declaring September as National Sickle Cell Awareness Month, congratulating the Sickle Cell Disease Association of America Philadelphia / Delaware Valley Chapter in recognition of their 26th Annual Walter E. Brandon (Virtual) Sickle Cell 5K Walk / Run Fundraiser, named in memory of the late Rev. Walter E. Brandon, and commending the work of researchers and medical health professionals working every day to fight Sickle Cell Disease and towards the ultimate goal of a universal cure.
WHEREAS, Sickle Cell Disease is a red blood cell disorder that can cause medical complications, reduce life expectancy, cause significant pain and lead to multi-organ failure. Sickle Cell Disease predominantly affects people of African descent in communities across the world, and a high incidence in Philadelphia. Despite its prevalence and implications, racism has impacted the healthcare system for Black people with Sickle Cell Disease, with many examples in Philadelphia and around the country. While some patients may also qualify for bone marrow transplantation and new gene therapies, few people in Philadelphia receive access to this life-changing treatment; and
WHEREAS, Patients with Sickle Cell Disease often report feeling stigmatized because they receive opioid medication, which may exacerbate the likelihood of opioid dependence and because medical professionals may doubt the severity of their pain and question their motivation for requesting pain medication. This mistrust can lead to less preventative care and poorer disease treatment, which can result in anxiety and depression; and
WHEREAS, The National Sickle Cell Disease Association of America founded more than 50 years ago, has 48 member organizations around the country devoted to raising awareness, providing education, and facilitating access to resources to support individuals living with Sickle Cell Disease as well as their families. The Sickle Cell Disease Association of America, Philadelphia / Delaware Valley Chapter is a...
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